Sweet surrender

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Why am I wearing sunglasses inside?

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As a long term, late stage Lyme Disease patient over the past 9 years I have had one constant symptom for most of my life, photosensitivity.  It's rare you find me without sunglasses on my face or head.  Whether it's rain, snow, sleet, cloudy or sunshine, my sunglasses are on inside my house, stores or outside.  I so often see people wondering why the heck I am wearing sunglasses inside a store.  People stare, make comments to a friend or give me strange looks.  No I'm not trying to look cool or pretend I'm a celebrity.  I live in Maine not California.  But I'm doing my best to get through a store with fluorescent lighting, noise, crowds, strong smells, and narrow aisles.  I'm doing my best to cope with all that input.  The sensory overload can be overwhelming, embarrassing and down right frustrating to someone like myself with chronic illness.  It feels like a full body assault and I'm doing my best to cope.  Sometimes if I can block out the bright lights…
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Bartonella and Me

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When I was diagnosed 4 years ago I never thought I would of been taken this journey, I thought just take the antibiotics and everything would be done and over with.  I also thought Lyme Disease was the illness that would never get better.  I am still in treatment for Bartonella a nasty bacterial infection ticks also carry.  It makes my hands, feet and face feel like they are red hot on fire for no reason.  I don't sleep well and I get cranky more than I would like from feeling so darn uncomfortable.  I have been off any heavy treatment for a while and now just using herbs to kill this stubborn Bartonella.  Sometimes I wonder if I will ever truly "recover" fully from this Late Stage Lyme and Co-infection's.  I am fortunate that Lyme led me to my Celiac diagnosis and now after close to two years on it I have gained 15lbs and yes that's a really good thing.  I weighed 97lbs for a long time and barely had any strength to do anything.  I can now walk a few miles a we…
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Ways to Get Help

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http://whatislyme.com/assistance/

Lyme Tap – The Lyme Test Access Program (Lyme-TAP) is a nationwide patient assistance program to provide assistance for initial Lyme-related lab tests to patients who demonstrate true financial need.
http://www.lymetap.com/
Lyme Light
Anyone diagnosed with Lyme disease between ages of 3-25 and can demonstrate a qualified financial need.
http://lymelightfoundation.org/
Meal Train
http://www.mealtrain.com/learn/what_is_a_meal_train/
Lyme Roommates
https://www.facebook.com/groups/445692835451476/445968085423951/?notif_t=group_activity
Lymies Seeking Roomates
https://www.facebook.com/groups/471747336171718/
Needy Meds
http://www.needymeds.org/index.htm
Make A Wish
Click on this link to go to “Make a Netwish”, a site to get monies, if you are in need.
http://www.netwish.org/Request_a_Net_Wish.html
Clinic of Angels
Click on this link to go to “Clinic of Angels”, a site to get monies, if you are in need.http://www.clinicofangels.org/ and click on the Financial applicatio…
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